Democrat and Independent Thinker..."The individual has always had to struggle to keep from being overwhelmed by the tribe. If you try it, you will be lonely often, and sometimes frightened. But no price is too high to pay for the privilege of owning yourself." -Nietzsche

Commenting on many things, including..."A government more dangerous to our liberty, than is the enemy it claims to protect us from." - Keith Olbermann

Thursday, January 11, 2007

We are all bleeding

Drat! Drat! Drat! Phooey!

There is so much I'd like to blog about if I had half a brain and half a body. I am so desperate to find a way to get my hands on a few months worth of Gastrocrom (cromolyn sodium), the only thing to liberates my brain from the wash of chemicals it is constantly drowning in and let's me THINK, I stayed up all night last night trying to find options, sources, something... only to find frustration. Looks like there's no way to get even a months worth without growing $680 on a tree somewhere. (Please click on my sponsor ads!) Even if I do eventually get the paperwork done for Medicare and actually get on it, Gastrocrom is one of 7 drugs for rare diseases that the National Organization for Rare Diseases is fighting to get coverage for on Medicare Part D. Only a few carriers cover it. It's recently been purchased by an Irish pharmaceutical company, and so far, I haven't found it even covered by any prescription assistance program.

Damn this government. Damn this government to hell. I mean it. They fuck over blind people who can't even identify the new money now, online phone services for deaf people are being taken over by criminals, and those American's with the rarest of diseases are shit out of luck, even more than any American with any health issue at all who would prefer to not have to go bankrupt to pay for their lives.

Obviously, it's being run by a chimp. One that is possibly a "dry drunk" chimp at that.

What is the dry drunk syndrome? "Dry drunk" traits consist of:

Exaggerated self-importance and pomposity
Grandiose behavior
A rigid, judgmental outlook
Childish behavior
Irresponsible behavior
Irrational rationalization

Ahhh, I know this would be better posted over at my rare and mysterious disease blog, but sometimes it just has to bleed over.

Well, at least my dream lover is doing another "Special Comment". He says it all so much more eloquently than I could even in my better days. I heart Keith, still.

1 comment:

amie said...

Hi, I hope this helps. You can order generic gastrocrom, cromolyn sodium from a compounding pharmacy. I paid 200$ for 240 doses of 100mg each. thats a 1 -2 month supply depending on your dose. I don't know where you live , so prices could be higher or lower there. I live in N.J.
Good luck Dec 2008